top of page
Search


New Medication Approved in March 2025 for PWS! VYKAT XR
We are so excited to see what this new medication will do to help our loved ones and families! Thanks to Soleno Theraputics and all those...
-
Apr 121 min read
0 views
0 comments


SB199 Passes in the 2025 Utah Legislative Session
SB199 Guardianship Statutes Bill sponsored by Senator Stratton passed at the Utah Legislature in March 2025! Under a Utah law passed...
-
Apr 121 min read
0 views
0 comments


UPWSA 2025 Christmas Party
We celebrated Christmas together with a yummy pizza lunch, crafts, a violin performance, and visits with Santa! It's always a joy to get...
-
Apr 121 min read
1 view
0 comments


UPWSA Swim Party August 2024!
"We had a wonderful time on August 30th at the Lehi City Pool! Families with Prader-Willi syndrome from around Utah gathered to eat a...
-
Oct 28, 20241 min read
17 views
0 comments


Fitness FunRaiser
The Fitness FunRaiser for Prader-Willi syndrome, or Walk a Mile in their Genes event was held on Saturday, May 11th, 2024 at Olympic Park...
-
Jul 24, 20241 min read
9 views
0 comments


February UPWSA Parent Respite Night
On February 3rd Michelle and Stef hosted another amazing Valentine-themed party for kids with PWS and their siblings! The parents...
-
Feb 5, 20241 min read
22 views
0 comments


UPWSA Christmas Party
We had an amazing time at our annual Utah Prader-Willi Syndrome Association Christmas Party! It was at a new location this year, the...
-
Dec 11, 20231 min read
13 views
0 comments


UPWSA Summer Swim Social
On August 25th we gathered at the Lehi City Pool for a fun evening that included a picnic dinner for the family, bingo, swimming, and...
-
Sep 19, 20231 min read
14 views
0 comments


Valentine Parent Night Out!
Parents got a night out while their kids had a Valentine's Party with Stef and her amazing crew! Thank-you so much to all those who made...
-
Feb 21, 20231 min read
11 views
0 comments


UPWSA Fun-Raiser 2022
On September 17, 2022 the annual Utah Prader-Willi Syndrome Association Fun-Raiser in Lehi was a huge success! We began the event with...
-
Sep 19, 20221 min read
13 views
0 comments


Makin' a Splash at the UPWSA Pool Party
In July the Utah Prader-Willi Syndrome Association hosted their annual swim party in Lehi! It began with dinner, bingo, and a craft, and...
-
Aug 9, 20221 min read
8 views
0 comments


PWS Siblings Unite!
The last couple days in July we had an amazing sibling retreat at the National Ability Center in Park City. Siblings of individuals with...
-
Aug 9, 20221 min read
13 views
0 comments


Fun at Camp Kostopulos!
Some of our friends with PWS had fun at Camp Kostopulos up Emigration Canyon in Salt Lake City this past week. Camp K offers trip camps,...
-
Jun 25, 20221 min read
12 views
0 comments


See what Utah's Lindsay Baker did with PWS!
https://www.pwsausa.org/read-delores-baker-shares-daughter-lindsays-success-in-2022-special-olympics-debut/ Our very own Lindsay Baker,...
-
Jun 25, 20221 min read
11 views
0 comments


Parent's Night Out!
Last weekend we had a wonderful opportunity to get away as parents for a few hours while our children were cared for and participated in...
-
May 8, 20221 min read
7 views
0 comments


Welcome to the new UPWSA website!
Thank-you, everyone, for all your support over the years! It's been a long time coming, and now we're excited to share with you this new...
-
Apr 3, 20221 min read
25 views
0 comments
bottom of page