We are so excited to see what this new medication will do to help our loved ones and families! Thanks to Soleno Theraputics and all those...

SB199 Guardianship Statutes Bill sponsored by Senator Stratton passed at the Utah Legislature in March 2025! Under a Utah law passed...

We celebrated Christmas together with a yummy pizza lunch, crafts, a violin performance, and visits with Santa! It's always a joy to get...

"We had a wonderful time on August 30th at the Lehi City Pool! Families with Prader-Willi syndrome from around Utah gathered to eat a...

The Fitness FunRaiser for Prader-Willi syndrome, or Walk a Mile in their Genes event was held on Saturday, May 11th, 2024 at Olympic Park...

On February 3rd Michelle and Stef hosted another amazing Valentine-themed party for kids with PWS and their siblings! The parents...

We had an amazing time at our annual Utah Prader-Willi Syndrome Association Christmas Party! It was at a new location this year, the...

On August 25th we gathered at the Lehi City Pool for a fun evening that included a picnic dinner for the family, bingo, swimming, and...

Parents got a night out while their kids had a Valentine's Party with Stef and her amazing crew! Thank-you so much to all those who made...

On September 17, 2022 the annual Utah Prader-Willi Syndrome Association Fun-Raiser in Lehi was a huge success! We began the event with...

In July the Utah Prader-Willi Syndrome Association hosted their annual swim party in Lehi! It began with dinner, bingo, and a craft, and...

The last couple days in July we had an amazing sibling retreat at the National Ability Center in Park City. Siblings of individuals with...

Some of our friends with PWS had fun at Camp Kostopulos up Emigration Canyon in Salt Lake City this past week. Camp K offers trip camps,...

https://www.pwsausa.org/read-delores-baker-shares-daughter-lindsays-success-in-2022-special-olympics-debut/ Our very own Lindsay Baker,...

Last weekend we had a wonderful opportunity to get away as parents for a few hours while our children were cared for and participated in...

Thank-you, everyone, for all your support over the years! It's been a long time coming, and now we're excited to share with you this new...