Pamela Hawkes Tobler was the President of the Utah Prader-Willi Syndrome Association from August 1996-January 1998. She served on the Prader-Willi Syndrome Association (PWSA-USA) National Board of Directors from 1999-2006. She has worked in the Public Relations department at Covey Leadership Center, customer service at JetBlue Airways, special education at Alpine School District and currently works as an Administrative Assistant for a non-profit that provides housing and support for those with mental health illnesses. While spending many years as a stay-at-home mom, she volunteered in many PTA positions and with the Boys Scouts of America for 14 years. Pamela and her husband Brent have five children. Their oldest is a 26-year-old son with Prader-Willi syndrome and they have devoted their lives to helping him live his best life.