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What is PWS?

Prader-Willi syndrome (PWS) is a complex genetic disorder resulting from abnormality on the 15th chromosome.  PWS causes low muscle tone, short stature if not treated with growth hormone, cognitive deficits, problem behaviors, and most notable, a chronic feeling of hunger which, when coupled with a metabolism... 

What We Do

UPWSA is a 501(c)(3) nonprofit organization providing support to individuals diagnosed with PWS, their families, communities, and care providers.  We work in conjunction with the Utah Prader-Willi Syndrome multi-disciplinary medical clinic, which provides medical care for children and adults with PWS...

Make a Donation

Funds donated to UPWSA are used to help provide respite care to parents, sponsor Utah PWS conferences, provide educational materials and adaptive equipment for Utah families, and make available summer stipends for children with PWS to enjoy summer camps and engage with the community around them.

Upcoming Events

  • PWS October Respite Night
    PWS October Respite Night
    Sat, Oct 07
    Oct 07, 5:00 PM – 9:00 PM
    Lehi, 1252 N 1200 W St, Lehi, UT 84043, USA
    This is a win-win evening for parent and child with PWS! DO NOT click "REGISTER" button. Follow SignUp Genius link to register!
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