Megan Jennings Kroff has been a part of the Prader-Willi Syndrome journey since her daughter was diagnosed with Prader-Willi Syndrome (PWS) at three years old in 2005. It was difficult to go without a diagnosis for so long and she loves being a part of helping other families with this journey. This Utah Prader-Willi Association has been a life line. She is a wife and a mother to 3 beautiful children. She has her Associates from Dixie State University. She’s taught piano lessons for 15 years and is a professional home organizer. Organizing clients and teaching children have helped her serve on this PWS board of Utah for several years. She enjoys volunteering her time and mentoring other PWS families.