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Overview: What is Prader-Willi Syndrome?


Prader-Willi Syndrome (PWS) is a two stage, complex genetic disorder affecting the hypothalamus of the brain, causing a chronic feeling of hunger that can lead to excessive eating and morbid obesity.

Prader-Willi Syndrome is a lifelong condition complicated by developmental delays, low muscle tone, mental retardation, and behavioral issues.

Approximately 70% of the children in Utah with the syndrome have not been diagnosed. Early diagnosis and intervention can prevent many of the complications associated with the syndrome, including morbid obesity, diabetes, congestive heart failure and respiratory failure.

Prader-Willi Syndrome is one of the 10 most common syndromes seen in genetic clinics. There is no cure at this time, but there is hope!