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Mission Statement
"The mission of the Utah Prader-Willi Syndrome Association is to provide families and professionals with a network of support, resources and information, to promote awareness of the syndrome and raise funds that will directly benefit Utahn’s with PWS. In addition, the association facilitates opportunities to congregate pro-active individuals who can pool talents, resources, ingenuity and vision to produce more options, increase quality of life, and create a brighter future for individuals with PWS."
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What is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a two stage, complex genetic disorder affecting the hypothalamus of the brain, causing a chronic feeling of hunger that can lead to excessive eating and morbid obesity. Prader-Willi Syndrome is a lifelong condition complicated by developmental delays, low muscle tone, mental retardation, and behavioral issues.
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UPWSA Fundraiser
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Skip A Lunch 2009
During April and PWS awareness month in May, we will be doing a "Skip A Lunch" fundraiser instead of the "Walk for Prader-Willi Syndrome".
We hope you will join us in raising funds for PWS!
To download the flyer, click here.
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UPWSA Family Picnic
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Friday, June 12, 2009
We will be having a UPWSA family picnic in June. This will enable families who will be traveling to attend the June PWS Clinic to get together for some fun with other families in our group. Check back for more information on the location and time. It should be fun!
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