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Mission Statement
"The mission of the Utah Prader-Willi Syndrome Association is to provide families and professionals with a network of support, resources and information, to promote awareness of the syndrome and raise funds that will directly benefit Utahn’s with PWS. In addition, the association facilitates opportunities to congregate pro-active individuals who can pool talents, resources, ingenuity and vision to produce more options, increase quality of life, and create a brighter future for individuals with PWS."
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What is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a two stage, complex genetic disorder affecting the hypothalamus of the brain, causing a chronic feeling of hunger that can lead to excessive eating and morbid obesity. Prader-Willi Syndrome is a lifelong condition complicated by developmental delays, low muscle tone, mental retardation, and behavioral issues.
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Utah PWS Conference 2011
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Thurs., Sept. 8, 2011 at
6:00 PM
Primary Children's Medical Center
Come join us for dinner and an informative conference on physical and behavioral health crisis management in Prader-Willi syndrome. Dr. Gregory Cherpes, MD will be presenting.
For more information, click here.
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