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Mission Statement
"The mission of the Utah Prader-Willi Syndrome Association is to provide families and professionals with a network of support, resources and information, to promote awareness of the syndrome and raise funds that will directly benefit Utahn’s with PWS. In addition, the association facilitates opportunities to congregate pro-active individuals who can pool talents, resources, ingenuity and vision to produce more options, increase quality of life, and create a brighter future for individuals with PWS."
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What is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a two stage, complex genetic disorder affecting the hypothalamus of the brain, causing a chronic feeling of hunger that can lead to excessive eating and morbid obesity. Prader-Willi Syndrome is a lifelong condition complicated by developmental delays, low muscle tone, mental retardation, and behavioral issues.
more...
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Vote for UPWSA
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The APX Alarm "Gives Back" project is giving a total of $250,000 to 6 non-profit organizations that
are doing heroic work in communities across the United States.
Click here
to login to your Facebook account and vote for the UPWSA.
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Dance for PWS
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Raise Funds for the UPWSA
Join us February-March 2010 in raising funds for Prader-Willi syndrome in a new and exciting way! "Dance for PWS" is a dance video competition, which also includes a dinner/awards event on March 12th in Provo, UT. To make a reservation for the event, vote for a dance video, or learn more about either, click here.
We want to thank our generous sponsors: APX Alarm and Christensen/Thornton PLLC.
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