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Mission Statement
"The mission of the Utah Prader-Willi Syndrome Association is to provide families and professionals with a network of support, resources and information, to promote awareness of the syndrome and raise funds that will directly benefit Utahn’s with PWS. In addition, the association facilitates opportunities to congregate pro-active individuals who can pool talents, resources, ingenuity and vision to produce more options, increase quality of life, and create a brighter future for individuals with PWS."
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What is Prader-Willi Syndrome?
Prader-Willi Syndrome (PWS) is a two stage, complex genetic disorder affecting the hypothalamus of the brain, causing a chronic feeling of hunger that can lead to excessive eating and morbid obesity. Prader-Willi Syndrome is a lifelong condition complicated by developmental delays, low muscle tone, mental retardation, and behavioral issues.
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UPWSA 2008 Swim Party
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Saturday, August 16, 2008
The annual UPWSA Swim Party will be held at a new location this year in Holiday, UT. We will start swimming at 10:30 a.m. and eat lunch at noon.
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UPWSA 2008 Conference
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Saturday, September 6, 2008
Come join us for an exciting conference this year! We're thrilled to have Dr. Janice Forster and Dr. Linda Gourash, two world-class experts in both the medical treatment and behavioral management of PWS.
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UPWSA 2008 Christmas Party
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Saturday, December 6th, 2008
Come join us at our annual Christmas Party.
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